Dear Evy:

promising to live a happy and simpler life in honor of my evelyn

Dearest Evelyn, In my quest to be happy, there has been one thing in particular that keeps making me sad. Who were you supposed to be? When would you walk? What were you going to look like when you were 3 or 21?

Well Evelyn, someone put it in perspective for me yesterday. She said you were exactly who you were supposed to be. You lived a wonderful 10 months and 9 days. You were my beautiful little girl. A mommy’s girl. You didn’t give smiles away easily and was always content if being held. You had an amazing belly laugh. You kicked your legs when you were excited. You were innocent. You were your own person and lived the life you were meant to lead.

You have touched me so deep and made my life wonderful. I am so blessed to have had the chance to love you, hold you and get to know you. Thank you for giving me those 10 months.

Our dear friend Rocky was on our list to call in the middle of the night when Evy was sent to heaven. He sat down and wrote this poem about our precious little girl. I cried while reading it, but then actually laughed in the last verse because it says ‘wipe away those tears.’ Well Rocky, you just made me sob while reading it and now you tell me not to cry! The poem is just perfect.

EVY IN HEAVEN

Care free and innocent
Smiling through life
No one could predict
The pain and the strife
Happy and loving
Rarely a fuss
Hold her “face out”
So she can see all of us
Not long for this world
Not even a year
Collectively the heavens
Rained down a tear
With family at her side
Storms rumbled through the night
God called her home
She followed the light
Why does this happen?
This can’t be his plan
She fought all she could
She’s now in His hands
We’re left here with questions
Celebrating her days
It’s so hard to understand
The grace in His ways
She is the lucky one
But it’s so hard to see
She’ll sit by His side
For the rest of eternity
He’ll hold her tight
And make sure she’s fed
Tucked in by the Lord
She’ll sleep sound in her bed
Wipe away those tears
You’ll see her again
She awaits you with smiles
In the Kingdom of Heaven

– Rocky Doller

June 5, 2014

IMG_1414 IMG_1412 IMG_1410

I wish I had good news but I’m just as concerned today – she woke up but didn’t move – she acts like she’s soo tired – fever 102.4 – the medicine that is supposed to dissolve in her mouth wouldn’t because her mouth was so dry – diarrhea 3 times – nursed once and so far has kept it down. I’m worried she is dehydrated.”

This was my text Sunday morning to my cousin when she asked how Evy was doing. We gave Evy some pediatlyte and she gulped it up but immediately threw it up. We started giving her smaller doses at a time and she was able to hold that down. She was still having diarrhea but no wet diapers. I started alternating nursing and pedialyte but by 1:00 she was just too tired to wake up. I had given her motrin so the fever was temporarily gone.

No fever – but she won’t eat or nurse – had to fight her to get 1/2 teaspoon pedialyte down – almost liquid poop – she doesn’t cry so no tears – no wet diapers – very tired

I called my doctor-on-call to let them know that she didn’t have any wet diapers and they suggested going back to Children’s ER. I picked Adam up from work and then picked up his mom, Sue. When we arrived, Evy’s temperature jumped back up to 104.8. They struggled to get an IV in her tiny arms. (Maybe because the room we were in, was a broom closet turned ER room. We kept joking about that tiny room. It kept our spirits lifted.) Third time worked. They drew some blood and discovered her phosphate levels were low, she was dehydrated and from my urging, decided to admit her. My parents also drove up to Children’s so that they could see out little pumpkin.

I felt if they didn’t admit her, I would just be driving back up the next day.  She was still very lethargic, but I did get her to nurse. While Adam was holding her, she had a major blow out that exploded out from all angles of her diaper. It was quite funny to see Adam trying to catch it in his hand.

When our room was ready upstairs, the grandparents left. I sat in a wheelchair and held Evy tight while they wheeled us up to our overnight room. Several doctors came in that evening and a couple nurses. I was so happy to see so many people working on her and asking us questions. Our nurse was great. She was perky and just thought Evy was the cutest. She had an order for a stool culture, but as soon as she was able to collect the stool culture, they canceled the order. She said we’ll just leave it here for a bit incase they change their mind.

Adam and I took turns feeding Evy throughout the night. I started pumping only so that we could tell exactly how much she was eating from the bottle. I finally felt calm knowing that she was getting her fluids and with the team of doctors and nurses that she had. They all felt she just had a stomach bug and that she was a little dehydrated. I just knew that she would have to be feeling better by morning.

 

I’m usually a pretty laid back mom. I never rush to the doctor or panic about my kids being sick, but my gut instinct was telling me something just wasn’t right. She couldn’t really sit up and was very lethargic. She had been having diarrhea and throwing up about every other feeding. Her fever had been very high for three days now.

I was contemplating taking her to Cincinnati Children’s hospital. Adam was home with her and I was at work, although I wasn’t doing any work. I was calling the doctors and my cousin, who is a NICU nurse. Adam wasn’t convinced at first. We were talking on the phone and he said she was eating a banana just fine. But when I asked if she was feeding herself or if he was feeding her, he became concerned because she didn’t act like she knew how to use her hands.

At the ER, they took her temp, 104.6, and gave her a dose of Motrin based on her weight. She threw up in the ER and they gave her pedialyte, applesauce and I nursed. So they also thought just a viral infection and was happy to see that she was nursing. They gave us two prescriptions, one for upset stomach and another to help with her bowels. They said to return only if her fever persisted for 5 days or if she showed signs of dehydration.

That night I slept in the recliner and let her sleep on my chest. She just wanted to cuddle. I was hoping that she would be better by morning.

ER Visit ER Visit

I went to work Friday morning and Adam stayed home with Evy and Ava. Evy still had a fever and Adam was going to call the On-Call Doctor to get an appointment. At 9:30 she was seen by the doctor and they had someone come from the hospital to drawl blood and insert a catheter to check for a UTI. Preliminary results showed no sign of a UTI and they were still thinking just a viral (stomach) bug. They said it could take 4 days before she would feel better. Adam brought her in to our work. This was the first day I noticed that she really didn’t care who was holding her. She had always been a Mommy’s Girl. My bestie Becky fed her a bottle that I had just pumped. She drank it really well, but when Becky sat her up, a waterfall of milk came back out.

I left work to take her home and cuddle on the couch. Adam’s mom was going to keep Ava. Her fever was still high: 103 – 104. The doctor told us to alternate Tylenol and Motrin. Motrin was the only thing that actually kept her fever down, but it still persisted. I continued to nurse but she had a decreased appetite. The doctors called us that evening to let us know that so far nothing was growing on the blood and urine cultures. This was the first night that the diarrhea started, which was supposed to be a good thing because it gave the doctors more of a reason to think stomach bug. We went to sleep hoping that tomorrow she would be better by morning.

Evy's Last Smile Evy's Last Smile Evy's Last Smile

This was the last time I ever saw her smile. I was hoping that this was the start of her feeling better.

“Good (noon) Sunshine! Went on a good walk this morning and made some new life Evylutions to live by, we love you guys.

We are seeing her and thinking of her in EVERYTHING good…”

– From my good friend Kelly

June 1, 2014

Ava & EvyLittle Evelyn, today is rough. There are just so many memories of you everywhere. I love all the memories, it just doesn’t seem real that there won’t be anymore to be made with you in them. We took your sister to her first dance recital yesterday and there were two sisters who were close in age around 6 and 4. That was supposed to be you and Ava.

Today Ava was asking about you and what you have been doing. I had to tell her again that you wouldn’t be coming home and that from now on, she can only see you in pictures. It brought tears to my eyes knowing that is the only way I’ll ever see you. My heart is broken and I miss you so much.

– Love Mom

We were already prepared that Evy might have a fever when she woke Thursday morning. The evening before, Adam had fed her a bottle and she fell asleep around 7:30. I had been teaching a floral design class and did not get home until 8:30. He was holding her in the rocker as she slept. She sometimes took late naps, so that wasn’t unusual. But when he laid her down and she continued to sleep, that was unusual. Thursday morning she was radiating heat. Obviously she wasn’t going to the sitter. Adam took Ava on to Babysitter Beth and I stayed home to cuddle with my pumpkin. She slept most of the day, but continued to get hotter. I don’t like giving tylenol unless necessary, but once her fever climbed to 103, I thought it was time. I took it a few moments later and it was then 104. I called Adam to tell him that I thought we should head to the doctor. Our doctor was out of town and it was 4:32. The on call doctors stop seeing patients at 4:30. So to Urgent Care we went. There is nothing urgent about Urgent Care. I was getting so mad because she felt so hot and I felt like her fever was rising even more. But of course when the doctor did finally see her, it was only 101. The doctor ruled out ear infection and cold/sinus. Couldn’t rule out UTI because they ran out of catheters. hmm… They concluded with possibly a virus and also gave us this bag to try to catch our baby’s pee? Evy seemed to perk up after leaving urgent care so we weren’t too concerned. I just thought the tylenol finally took affect and that she would be better by morning.

Evy Sick

You could just tell that she didn’t feel like herself 😦

My favorite memory of that day: I met Adam at the Dearborn County Chamber of Commerce for lunch. They were grilling out so Adam, my dad, Evy and I went down there for a quick bite. I was holding Evy against my chest as she slept while I ate my hotdog. Next thing I know, she has the biggest glob of ketchup in her hair. Ooops…

My Promise To You

“My heart and world are shattered. But she was the most happy and simple baby for the 10 months that I was able to cherish her. To be negative about this whole experience would get in the way of all my wonderful memories. She was put on this earth for a reason so I am going to try to learn from her and be happy and lead a simpler life in honor of our happy, simple baby. Oh I loved you so so much Evelyn Sarah….”

May 31, 2014

 

Dear Evy, today I have really missed you. I’m glad your daddy’s family drug me out of the house or I feel it would have been one of those days that I just sat and cried. I saw some wild daisies growing along side the road and they made me think of you. Your all white casket with daisies beveled on top has given me a new found love for these flowers. I took your sister with me and she laid them by your side. Your dad mistakenly told her that you were buried in the ground so now she likes to say you are under the sand. Obviously its a lot to understand for a 3 year old. But we now focus on that you are in heaven and an angel. She asked where heaven is and told her all around us and that you will always be near. We then blew kisses into the sky and screamed “WE LOVE YOU EVY!”